Welcome to our resources, where you can download our booklets, read a magazine or watch a video. If you require information in any other format, please get in touch.
A Family Legacy - Sir Julian Paget
Sir James Paget was a British surgeon and pathologist who studied Paget’s disease extensively. His great grandson, the late Sir Julian Paget was a Patron of the Paget’s Associatio…
PDF 219.5kb
A GP's perspective on Paget's disease
GP Dr Cat Nairn emphasised the importance of timely diagnosis and specialist referral
Watch time: 4 mins
A personal story plus questions and answers
(Watch time: 26 min) Having lived with Paget’s disease for some years and suffered complications, Keith explained the difficulties he encountered when he needed a hip replacement.
Allan's story
(Watch time: 7 min) Allan describes how Paget’s disease stopped him from dancing, but following successful treatment, he found himself able to return to the dance floor.
Anne - Paget’s in the family
Anne shares how participating in Paget’s research led to her diagnosis of Paget’s disease
Watch time: 5 mins
Awards for research students
(Watch time: 22 min) Alisha Sharma and Nicole Ball received Student Research Bursary Awards from the Paget's Association for their research into Paget's Disease of Bone.
Biography of Sir James Paget
Read a biography of Sir James Paget, whose name was given to Paget's disease. His original description of the condition in 1877 is so good that little has changed
PDF 725.2kb
Bones in a dish unlock new possibilities for treatment
(Watch time: 10 min) Dr Philippa Hulley (University of Oxford) discusses research funded by the Paget’s Association to develop a fully human 3D bone model of Paget’s disease.
Brazil - An interview with Dr Luiz Griz
(Watch time: 8 min) Paget's disease is discussed by Dr Luiz Griz and Dr Tori Herridge. In Brazil, most cases reported are from Recife.
Canada - An interview with Dr Laëtitia Michou
(Watch time: 10 min) Dr Laëtitia Michou explains how Quebec has the highest number of Paget's cases in Canada, with genetic and environmental factors playing a role.
Clinical Guideline - Full
The full clinical guideline for the Diagnosis and management of Paget's Disease of Bone in Adults
PDF 2.8mb
Clinical Guideline - Summary
A clinical Guideline, for the Diagnosis and Management of Paget’s Disease of Bone in Adults, which assists health professionals to consider the evidence and discuss options with t…
PDF 1.2mb