Help others by sharing your experience 

We know that those with Paget’s disease appreciate hearing the experiences of others with the condition. 

Follow the link below to download a 'Share Your Story' form, which can be completed and emailed to Alternatively, just get in touch to discuss sharing your story, for the benefit of others, on our website and/or in our magazine. Contact us by following this link.

Share your story form

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Read others experiences of Paget’s disease below


Lynda lives in Rhode Island, USA and was diagnosed with Paget’s disease when she was 55. Here she explains how Paget’s disease has affected her.

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Member, Allan from Hertfordshire, explains how he was diagnosed with Paget’s disease and how this affected his dancing.

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Use the link below to see all personal stories of Paget's disease

Read all individual experiences


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As a valued member, you'll receive a comprehensive Paget’s Information Pack, along with our regular Paget's News magazine.

Stay at the forefront of advancements with our latest news: research, treatment and more.

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