Individual Experiences

Individual Experiences

Emanuela

Emanuela is a 57-year-old nurse who lives in Italy. She wanted to share her experience of Paget’s disease to help others.

Read more

Linda

Member of the Paget's Association, Linda from Cheshire, was diagnosed in 1993, aged 45, with Paget’s disease in her skull, spine and right hip. Here she reflects on her experience.

Read more

Simon

Simon took the brave decision to have his bowed leg straightened.

Read more

Lynda

Lynda lives in Rhode Island, USA and was diagnosed with Paget’s disease when she was 55. Here she explains how Paget’s disease has affected her.

Read more

Recardo

A worldwide entertainer, businessman and event organiser, Recardo Patrick first rose to fame as lead singer with the band Sweet Sensation. Recardo came to be a Patron of the Paget's Association after discovering that he had Paget’s disease.

Read more

Allan

Member, Allan from Hertfordshire, explains how he was diagnosed with Paget’s disease and how this affected his dancing.

Read more

Jim

Jim is 71 and from Virginia, USA. He was shocked to discover he had Paget's disease. Here he shares his experience of diagnosis and treatment.

Read more

Bill

Bill, a member of the Paget’s Association, from the north-east of England, explains that his leg has become bowed due to Paget’s disease

Read more

Mickey

Mickey is from Toronto, Canada. In her video interview, she explains how she noticed symptoms about fifteen years ago.

Read more

Michael

Michael became a member of the Paget’s Association and wanted to share his experience of Paget’s disease. Michael works as a part-time security officer in London and is also studying full-time for a Health Sciences with Foundation Degree.

Read more

Doreen

Doreen has shared her story here before and when we heard the sad news that aged 87 she had passed away, we knew that we had lost not only a loyal supporter but also a dear friend. Read a little about her story and a tribute to an amazing lady.

Read more

Sheila

Sheila had never heard of Paget's disease and found support from the Paget’s Association’s Network. This is her experience in her own words.

Read more

Keith

Former, Trustee of the Paget's Association, Keith Simpson, discusses his experience of Paget's disease and getting back onto the golf course.

Read more

Sheila

Sheila, from the Isle of Bute in Scotland, was diagnosed several years ago when she was in her late forties/early fifties. She noticed her winter boot wouldn’t go on properly on her left leg and made an appointment to see her GP.

Read more

Terence

Some people have Paget’s disease in just one bone (monostotic) whereas others have it in several (polyostotic). Terence has polyostotic Paget’s disease. Here he describes how he copes.

Read more

John

A loyal supporter of the Paget’s Association, John explains how the treatment worked for him and how the charity supported him. The photograph shows John (left) with Eva (right), helping raise awareness in Salford. Both are members of the Association

Read more

Maureen

Maureen is a retired lab technician who enjoys cross-country running and swimming. She has a very simple message regarding treatment.

Read more

Mary

Mary, from Greater Manchester, is happy with the care and treatment she’s received. Here she explains.

Read more

Was this useful?

If you've benefited from this information, please note that we are a charity and rely solely on donations to sustain our efforts in offering information and support. Your donation can make a significant difference in our ability to continue this important work.

Donate
Back to top