Add the 11th January to your calendar every year!  

Raising awareness of Paget’s disease is one of the key aims of the Paget’s Association. 

We frequently hear that the first time many people hear about Paget's disease, a condition with affects the structure of the bone, is when they are diagnosed.  We work to raise awareness of Paget’s, which can be painful and lead to complications.  The 11 January is particularly important as it marks International Paget’s Awareness Day.  On this day, we invite you to help us raise awareness of Paget’s disease in whatever way you can.   Read more about the symptoms and treatment here and perhaps you can help by sharing our posts on social media, or by making a donation to help our work.

Awareness Day themes and videos 

Each Awareness Day, a theme is set by the Paget’s Association, to explore different aspects of Paget’s Disease of Bone around which a series of educational video content is created.  Please find some of our previous themes and videos below. 

The Association also hold online Question and Answer sessions with our Chair, Prof Ralston each year, to answer your questions on Paget’s disease via Zoom.  To see a recording of a previous session, click here

See below some examples of how people have helped to raise awareness. 

Awareness Day 2024 - Paget’s research: a journey through time and innovation

Discover how new research creates hope for the future. Through this new video series you can embark on a visual journey through patient experience of research to new possibilities for treatment and genetic testing.  

Awareness Day 2023 - Personal Experiences and 50 Years of the Paget's Association

This series of videos created for Paget's Awareness Day 2023 explores personal experiences of Paget's disease and the history of the Paget's Association in our 50th year. 

Awareness Day 2022 - A Global Perspective on Paget's disease

From Paget's disease in India to a hot-spot in Quebec, watch our series of interviews with clinicians and researchers, from around the world. 

Dr Tori Herridge interviewed experts from Italy, Spain, Canada, Brazil and India to hear their unique perspectives on Paget's disease. Dr Herridge, an evolutionary biologist and a presenter on Channel 4’s Bone Detectives series, recorded the interviews, which were released for Paget’s Awareness Day. In addition, Mr Recardo Patrick was interviewed by Professor Ralston to explain his personal experience of Paget’s disease.

Awareness Day 2021 - The Treatment Story

International Paget's Awareness Day 2021 focused on the important topic of treatment, its history and the research changing how Paget’s disease may be managed in the future.  These include video interviews with leading experts, including our Chairman, Professor Stuart Ralston, and Honorary President, Professor Graham Russell.

The videos focus on different areas of treatment, including the importance of the discovery of bisphosphonates for Paget’s disease, and the significance of current and future research into the condition. 

Awareness Day 2020 - Ancient Paget's

How could ancient skeletons change the history of disease? FInd out more in our documentary made for Paget's Awareness Day 2020. 

How you made a difference to our Awareness Days 

Thank you to all who have taken part in our Awareness Days. Many shared information on social media and took Paget’s Display Packs to health and community centres. Others put up posters and some held fundraising events. Here are some of your photos and events. 

 Open House - Janet and Graham held an Open House event, providing coffee, cakes and other refreshments. They also held a raffle and tombola. Family, friends and neighbours all gave generously, raising a total of £294 for the Paget's Association.  

Coffee Morning and Raffle - The Inner Wheel Club of Porthcawl raised £140 by holding a coffee morning and by raffling a handmade blue and green lap quilt.  

Afternoon Tea at Wesley Table Tennis club in memory of Sir James Paget was organised by Marjorie and Keith, in Leigh-on-sea. Their blue and green theme included cakes commemorating the anniversary of the birth of Sir James Paget on the 11th January.  

Display Packs and posters were requested by many of you and taken to health and community centres to raise awareness of Paget's disease.  

Help us make a difference

Your donations help us to change the lives of those with Paget’s Disease and every donation, no matter how small, is appreciated.

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