Paget's Awareness Day 2023

Personal Experiences and 50 Years of the Paget's Association.

This series of videos explores personal experiences of Paget's disease and the history of the Paget's Association in our 50th year.  

Paget's Awareness Day 2023 - Introduction

(Watch time: 1 min) In this short video, Professor Stuart Ralston introduces Paget’s Awareness Day 2023: Personal Experiences and 50 Years of the Paget's Association.

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Sheila

(Watch time: 7 min) Sheila discusses with Prof Stuart Ralston, her personal experience of Paget’s disease, including why she turned down corrective surgery.

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Allan's story

(Watch time: 7 min) Allan describes how Paget’s disease stopped him from dancing, but following successful treatment, he found himself able to return to the dance floor.

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Mickey's experience

(Watch time: 9 min) After suffering from pain Mickey found treatment really helped and from Canada, she joined one of the Association’s Virtual Support Groups.

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Dr Claire Clarkin

(Watch time: 8 min) Warmth can sometimes be felt around the area of Paget’s disease. Dr Clarkin explains why and how research is looking closely at blood vessels.

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Sue discusses the Paget's Association's humble beginnings

(Watch time: 8 min) When the Paget’s Association celebrated its 50th Anniversary in 2023, Office Manager Sue Clegg discussed the charity's humble beginnings.

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Diana explains how the Association provides support today

(Watch time: 9 min) Diana Wilkinson, Specialist Paget’s Nurse and Director of Education, explains the ways the Association offers information and support.

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