Patrons, trustees and staff
Prof Graham Russell
Emeritus Professor of Musculoskeletal Pharmacology within the Botnar Research Centre, Oxford and the Mellanby Centre for Bone Research, Sheffield, Graham Russell played a key role in the discovery and development of bisphosphonates for the treatment of bone disorders.
Prof Stuart Ralston
Chair of the Paget’s Association since 2018, Professor Stuart Ralston is a Rheumatologist at the Western General Hospital, Edinburgh. He has researched widely on the role of both genetic and environmental factors in Paget’s disease and has designed and led several large‑scale clinical trials investigating the best methods of treatment, including the PRISM, PRISM-EZ and ZiPP studies.
Prof Rob Layfield
Vice-Chair of the Paget's Association, Professor Rob Layfield researches Paget’s disease at the University of Nottingham. He studies the protein that was found to carry mutations in some cases of Paget’s disease. He became a Trustee in 2016.
Mrs Eve Berry
With many years of experience in the healthcare sector, Eve lives in London and is a Chartered Accountant, currently working in the drug discovery industry.
Mrs Kely Burman
A retired nurse and midwife living in Orsett, Mrs Kely Burman has not only cared for those with Paget’s disease, but her mother also had the condition. Kely joined the Board of Trustees in 2020.
Mr Mohamed El Erian
A solicitor at Jones Day, London, Mohamed brings his legal expertise to the Board of Trustees.
Dr Sheelagh Farrow
Dr Sheelagh Farrow graduated in Physiology/Zoology at the University of Sheffield and gained a doctorate in Biochemistry from the University of Oxford. Her career has included work on multiple aspects of bone metabolism. Prior to retirement she was the Managing Director of International Medical Press, which provides independent and accredited education to healthcare professionals.
Mr Alan Martin
A retired company director, Alan lives in Wokingham. He has Paget’s disease and believes the interaction between patients and clinicians brings mutual benefits.
Dr Faiz Rahman
Faiz is a Consultant in Metabolic Medicine and Chemical Pathology, at the University Hospitals of Leicester, where he is involved in caring for those with Paget’s disease.
Mrs Amanda Sherwood
Based in Bristol, Mrs Amanda Sherwood became a Trustee in 2020. Now retired, she has experience in working for societies and teaching organisations, which specialise in the field of bone and related topics.
Mr Mark Wilkinson
An Orthopaedic Surgeon in the Metabolic Bone Unit of the University of Sheffield, Professor Mark Wilkinson has both an academic and clinical interest in Paget’s disease. He became a Trustee in January 2022.
Sir Henry Paget
Sir Henry Paget is the great-great-grandson of Sir James Paget (1814 – 1899), after whom Paget’s disease is named.
Mr Recardo Patrick
Entertainer and businessman, Recardo Patrick has Paget’s disease. He rose to fame as lead singer with the band, Sweet Sensation.
Mrs Joyce Cupitt
Mrs Joyce Cupitt’s husband had Paget’s disease. She served as a Trustee, for many years, before becoming an Honorary Patron in 2014.
Ensuring the well-being of individuals affected by Paget's disease and those who care for them requires education and support. Diana is a Registered Nurse who oversees these vital services, providing evidence-based information and guiding individuals towards sources of support, including our Helpline, networks and virtual support groups.
Operations and Engagement Manager, Jen Woodworth, joined the Association in 2019 and is responsible for membership administration, and various communications including social media.