What else may help?

Exercise 

Regular exercise is important. It helps to keep the joints mobile, control weight and maintains muscle tone, which helps protect bones. Whilst most forms of exercise and physical activity are good for general health to prevent falls, the most effective exercise should focus on both strength and balance. These exercises are often performed as part of a group in the community. 

To avoid excessive stress on Pagetic bone, any extreme forms of exercise should only be undertaken following discussion with your doctor. 

Physiotherapy 

Some people with Paget’s disease benefit from physiotherapy. This can involve exercises and techniques to help reduce pain and improve movement. It can also help to reduce the risk of injury and falls. 

Occupational therapy 

Occupational therapists can provide support to improve an individual’s ability to carry out everyday tasks and restore their ability to function as independently as possible. Therapists can help with special equipment like mobility aids and help adapt people’s homes to accommodate their individual needs. 

Orthotics 

An orthotic device is something that is externally fitted to support a part of the body. It may help reduce pain, improve function and improve mobility. Examples of such products are lumber supports, leg braces, footwear and insoles. An orthotist is a professionally qualified person who works as part of a multi-disciplinary team, ensuring that the orthotic prescription reflects the most appropriate solution to meet the individual’s needs.

Talk to others affected by Paget's

The Paget's Association hosts live educational events where you have the opportunity to connect with fellow individuals impacted by Paget's disease. Additionally, there are various networks and virtual support groups you can join.