What has research taught us?
We are pleased to share insights into research studies on Paget's disease, providing valuable information that can significantly impact the understanding and management of this condition for patients.
Disease mechanisms and models
What goes wrong inside bone cells? Investigating the mechanisms and models of Paget's disease enhances our comprehension of the disorder, opening avenues for groundbreaking therapeutic interventions
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Paget's genetics
A new gene associated with the disease revealed and molecular testing funded by the Association could enable earlier diagnosis of rare cancer
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Epidemiology and patient experience
This section includes research funded by the Association into: the incidence of Paget's in the UK; Vitamin D; side effects of bisphosphonate infusions; clinical presentation; and intensive versus symptomatic treatment
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Ancient Paget’s disease
Research funding by The Paget's Association enabled scientists to unravel an 800-year-old mystery associated with Paget's disease. Photo - Norton Priory
Read moreShared experiences survey
Your perspective matters!
Have you completed our shared experiences survey?
If you’re living with Paget’s Disease of Bone, we’d love to hear from you. Our anonymous survey explores shared experiences - things like occupation, environment and diet. It is purely for interest to see if we can spot common themes.
In due course, we intend to publish a summary, with responses anonymised, in our Paget’s News magazine. You may have received the survey by email or seen it in our magazine or on Facebook. Please only complete it once.
Research we fund
The Paget's Association funds many aspects of research into Paget's disease as well as educational projects.
Discover some of the many projects we have funded.
Help us make a difference
Your donations help us to change the lives of those with Paget’s Disease and every donation, no matter how small, is appreciated.
Donte or deposit funds raised.