The Treatment Story: Past, Present and Future
International Paget's Awareness Day 2021 focused on the important topic of treatment, its history and the research changing how Paget’s disease may be managed in the future. To see a brief history of how treatment was developed for Paget's disease, click here >
Thank you to everyone who got involved in International Paget's Awareness Day on the 11th January 2021.
Watch and Share our Video Series on Treatment - CLICK HERE TO WATCH
We filmed a series of videos, based around the topic of treatment, which is available to watch on our website and YouTube channel, to coincide with Paget’s Awareness Day. These include interviews with leading experts, including our Chairman, Professor Stuart Ralston, and Honorary President, Professor Graham Russell. They focus on different areas of treatment, including the importance of the discovery of bisphosphonates for Paget’s disease, and the significance of current and future research into the condition.
Below our Chairman, Professor Stuart Ralston, introduces the series. All full-length episodes are available to watch now! - simply click here to watch and to find out more.
Questions and Answers!
On the day, we held a live Question and Answer session, to enable those with Paget's Disease to have their questions answered by Chair of the Paget's Association, Professor Stuart Ralston.
You can watch the recording by following this link.
Often, the first point of contact, for patients when diagnosed with Paget’s disease, is their GP. We regularly hear that when patients visit their practice, their doctor can sometimes have little experience of the condition. We want to contact GP practices, to help educate their staff, and send them a copy of our new information booklet, written for all healthcare professionals. We will be in touch with all GP practices, whose contact details we receive from those affected by Paget’s disease (available in the UK only).
If you are a healthcare professional, you can view a PDF of our new information booklet by clicking here.
If you would like information sent to your GP, please send us their name and address by email to firstname.lastname@example.org or using our contact form. Your details will not be disclosed when we send this out.
Helping to raise awareness among professionals, our Chairman, Professor Stuart Ralston and Vice-Chairman, Dr Stephen Tuck, have both had articles recently published in journals, which are widely read, especially amongst GPs, both in the UK and internationally. Full details will be in our next Paget’s News magazine. To receive our quarterly members' magazine and find out about the benefits of membership to the Association, please click here.
Wear a Paget’s Association T-shirt - Available in our Online Shop
The newest item in our online shop is this t-shirt featuring a beautiful portrait of Sir James Paget, (whose name was given to Paget’s disease), together with the Paget’s Association’s logo. The portrait has kindly been drawn by Professor Tim Arnett, from University College London, who is also the Chair of our Research Grants Committee. We would like to thank Tim for creating this brilliant drawing.
Share Your Story of Treatment
We know that treatment can be a concern for many who are diagnosed with Paget’s disease. We are often contacted by those who are worried about receiving medication and the potential side effects, which can cause treatment to be refused or postponed. To help support those who have concerns, we would appreciate hearing about your experience. These stories will help to expel some of the myths and answer questions around receiving treatment for people who are newly diagnosed.
Please contact us to share your story and help others know they are not alone. Anyone who is concerned about treatment, can contact our Nurse Helpline, where you can get answers to any questions you may have about Paget’s disease. To view individual experiences of Paget's disease, click here.
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Previous Year's Paget's Awareness Day - 2020
Specially produced for Paget's Awareness Day 2020, the exciting Research documentary below explores what medieval bones and teeth can tell us about Paget's disease.
Could ancient skeletons change the history of disease?
Focusing on the multi-disciplinary Paget’s research at Norton Priory in Runcorn, Cheshire, which has already attracted international interest, this research documentary details exciting research into medieval skeletons. Could this change the way conditions, including Paget’s disease, can be traced through history and therefore open opportunities to change the way we research diseases in the future?
If you are interested in looking at the original research paper it can be assessed at the PNAS website
Don't have time to watch the full documentary? - You can watch a trailer below.
How You Made a Difference…
Thank you to all who took part in any way. Many took Paget’s Display Packs to health and community centres and some put up posters. Some even held fundraising events. Here are some of your photos and events that took place for Paget's Day.
Janet and Graham held an Open House event, providing coffee, cakes and other refreshments. They also held a raffle and tombola. Family, friends and neighbours all gave generously, raising a total of £294 for Paget's.
Coffee Morning and Raffle
The Inner Wheel Club of Porthcawl raised £140 by holding a coffee morning and by raffling a handmade blue and green lap quilt.
Afternoon tea at Wesley Table Tennis club in memory of Sir James Paget was organised by Marjorie and Keith, in Leigh-on-sea. Their blue and green theme included cakes commemorating the anniversary of the birth of Sir James Paget on the 11th January.
Paget’s Awareness Display Packs and posters were requested by many of you and taken to health and community centres to raise awareness of Paget's disease.
Here are just a few of those who took wanted to help us raise awareness. THANK YOU ALL!
ADD THE 11TH JANUARY, TO YOUR CALENDAR EVERY YEAR!
We would like everyone to get involved. Help make every International Paget’s Awareness Day a success. Put the 11th January on your calendar and do something, however large or small it may be, to help us raise awareness of Paget’s disease on this special day!
Here is a glimpse of Sir Henry Paget recorded for the first-ever Paget's Awareness Day in 2019