International Paget's Awareness Day: 11 January

Raising awareness of Paget’s disease is one of the key aims of the Paget’s Association. The 11 January is particularly important to the charity as it marks International Paget’s Awareness Day. On this day, we invite you to help us raise awareness of Paget’s disease in whatever way you can. You can help by sharing our posts on social media, or by making a donation to help our work.

Watch our videos / Attend a virtual Q&A

Each Awareness Day a theme is set by the Association to explore different aspects of Paget’s disease. You will find these and associated videos below. 
Each January the Association also holds online a Question and Answer sessions with our Chair, Professor Ralston, to answer your questions on Paget’s disease (via Zoom).  To join this event contact us. To see a recording of a previous session, click here
Scroll on to see examples of how people have helped to raise awareness. 

Awareness Day 2025 - driving earlier diagnosis and appropriate treatment

For Paget’s Awareness Day, 11 January 2025, the Paget’s Association has produced a series of impactful videos featuring interviews with individuals living with Paget’s disease, a rheumatologist and a GP. 

Professor Stuart Ralston emphasises the importance of early diagnosis. He highlights the challenges of delayed referrals and missed opportunities, and stresses the need for greater awareness of Paget’s disease within general practice. 

Awareness Day 2024 - Paget’s research: a journey through time and innovation

Discover how new research creates hope for the future. Through this new video series you can embark on a visual journey through patient experience of research to new possibilities for treatment and genetic testing.  

Awareness Day 2023 - Personal Experiences and 50 Years of the Paget's Association

This series of videos created for Paget's Awareness Day 2023 explores personal experiences of Paget's disease and the history of the Paget's Association in our 50th year. 

Awareness Day 2022 - A Global Perspective on Paget's disease

From Paget's disease in India to a hot-spot in Quebec, watch our series of interviews with clinicians and researchers, from around the world. 

Dr Tori Herridge interviewed experts from Italy, Spain, Canada, Brazil and India to hear their unique perspectives on Paget's disease. Dr Herridge, an evolutionary biologist and a presenter on Channel 4’s Bone Detectives series, recorded the interviews, which were released for Paget’s Awareness Day. In addition, Mr Recardo Patrick was interviewed by Professor Ralston to explain his personal experience of Paget’s disease.

Awareness Day 2021 - The Treatment Story

International Paget's Awareness Day 2021 focused on the important topic of treatment, its history and the research changing how Paget’s disease may be managed in the future.  These include video interviews with leading experts, including our Chairman, Professor Stuart Ralston, and Honorary President, Professor Graham Russell.

The videos focus on different areas of treatment, including the importance of the discovery of bisphosphonates for Paget’s disease, and the significance of current and future research into the condition. 

Awareness Day 2020 - Ancient Paget's

How could ancient skeletons change the history of disease? FInd out more in our documentary made for Paget's Awareness Day 2020. 

How you made a difference to our Awareness Days 

Thank you to all who have taken part in our Awareness Days. Many shared information on social media and took Paget’s Display Packs to health and community centres. Others put up posters and some held fundraising events. Here are some of your photos and events. 

 Open House - Janet and Graham held an Open House event, providing coffee, cakes and other refreshments. They also held a raffle and tombola. Family, friends and neighbours all gave generously, raising a total of £294 for the Paget's Association.  

Coffee Morning and Raffle - The Inner Wheel Club of Porthcawl raised £140 by holding a coffee morning and by raffling a handmade blue and green lap quilt.  

Afternoon Tea at Wesley Table Tennis club in memory of Sir James Paget was organised by Marjorie and Keith, in Leigh-on-sea. Their blue and green theme included cakes commemorating the anniversary of the birth of Sir James Paget on the 11th January.  

Display Packs and posters were requested by many of you and taken to health and community centres to raise awareness of Paget's disease.  

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