Alan
Now living in Wokingham Alan, aged 81, comes originally from the northwest of England - a known hotspot for Paget’s disease.
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Diane
Diane’s home is in the picturesque landscapes of Western Australia. A former Associate Principal at a high school, she was forced to retire prematurely due to chronic pain.
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Emanuela
Emanuela is a 57-year-old nurse who lives in Italy. She wanted to share her experience of Paget’s disease to help others.
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Linda
Member of the Paget's Association, Linda from Cheshire, was diagnosed in 1993, aged 45, with Paget’s disease in her skull, spine and right hip. Here she reflects on her experience.
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Lynda
Lynda lives in Rhode Island, USA and was diagnosed with Paget’s disease when she was 55. Here she explains how Paget’s disease has affected her.
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Recardo
A worldwide entertainer, businessman and event organiser, Recardo Patrick first rose to fame as lead singer with the band Sweet Sensation. Recardo came to be a Patron of the Paget's Association after discovering that he had Paget’s disease.
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Allan
Member, Allan from Hertfordshire, explains how he was diagnosed with Paget’s disease and how this affected his dancing.
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Jim
Jim is 71 and from Virginia, USA. He was shocked to discover he had Paget's disease. Here he shares his experience of diagnosis and treatment.
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Bill
Bill, a member of the Paget’s Association, from the north-east of England, explains that his leg has become bowed due to Paget’s disease
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Mickey
Mickey is from Toronto, Canada. In her video interview, she explains how she noticed symptoms about fifteen years ago.
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Michael
Michael became a member of the Paget’s Association and wanted to share his experience of Paget’s disease. Michael works as a part-time security officer in London and is also studying full-time for a Health Sciences with Foundation Degree.
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Doreen
Doreen has shared her story here before and when we heard the sad news that aged 87 she had passed away, we knew that we had lost not only a loyal supporter but also a dear friend. Read a little about her story and a tribute to an amazing lady.
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Sheila
Sheila had never heard of Paget's disease and found support from the Paget’s Association’s Network. This is her experience in her own words.
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Keith
Former, Trustee of the Paget's Association, Keith Simpson, discusses his experience of Paget's disease and getting back onto the golf course.
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Sheila
Sheila, from the Isle of Bute in Scotland, was diagnosed several years ago when she was in her late forties/early fifties. She noticed her winter boot wouldn’t go on properly on her left leg and made an appointment to see her GP.
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Terence
Some people have Paget’s disease in just one bone (monostotic) whereas others have it in several (polyostotic). Terence has polyostotic Paget’s disease. Here he describes how he copes.
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John
A loyal supporter of the Paget’s Association, John explains how the treatment worked for him and how the charity supported him. The photograph shows John (left) with Eva (right), helping raise awareness in Salford. Both are members of the Association
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Maureen
Maureen is a retired lab technician who enjoys cross-country running and swimming. She has a very simple message regarding treatment.
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Mary
Mary, from Greater Manchester, is happy with the care and treatment she’s received. Here she explains.
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