Home » Share Your Experiences

Share Experiences

There are many ways you can share your experiences of Paget's Disease which can benefit others experiencing similar problems. You can also connect with others for mutual support. 

Scroll down for some ideas.

Share Your Story

Help Others by Sharing Your Experience

We know that those with Paget’s disease appreciate hearing the experiences of others with the condition. Follow this link to complete the 'Share Your Story' form. Alternatively, just get in touch to discuss sharing your story, for the benefit of others, on our website and/or in our magazine. Contact us by following this link.

Read about the experiences of others by following this link. There are also more detailed individual experiences in the Member's Area.

In the Member's Area:

Simon needed surgery to straighten his leg.

Irene's experience of diagnosis and treatment.

Doreen explains how it took 10 years to get a diagnosis.

Jean discusses Paget's disease and how she obtained treatment in South Africa.

Paget's Support Network

Join our Network

Members of the Paget’s Association can join our Paget’s Support Network. This is a free, mutually supportive network to enable members to talk or write to others who either have Paget’s Disease or who care for someone who has the condition. Please log in to obtain a form from the Member's Area.

Meet Others at our Events
Meet others who share your concerns

Meet others who have Paget's disease and share your concerns at our Paget's Information Events. More details.

Support Groups
Virtual Paget’s Support Groups

Follow this link for dates, times and information.

Local Support Groups

Currently, there is a support group in Sheffield.

Information regarding the groups can be found in our Member's magazine and by following this link.

You can also join our online Facebook Support group here.

We are always looking for people to help set up new groups so please get in touch if you can help..

 

Become a Member

Register here

Paget's Information Events

View Our Information Events

Receive the paget’s magazine

By becoming a member

Become a Friend of the Paget's Association

If you are not a member of the Association, but would like to stay up to date with our news and events via our mailing list, please sign up here to become a Friend of the Paget's Association. Please note, if you are a member, there's no need to sign up here as you already receive our updates and much more!

Your Details