Beyond ordinary pain
When getting a tattoo near the Pagetic bone, Anne experienced extreme pain. Her story highlights findings from the Pain in Paget’s study.
Watch time: 6 min
Geraldine’s struggle with Paget’s disease
Geraldine speaks openly about her challenging journey to diagnosis and treatment
Watch time: 7 mins
Paget's information events
(Watch time: 3 min) This highlights how useful our information events are for those affected by Paget’s disease to be able to meet experts and ask questions.
Pain mechanisms in Paget’s
Researcher Professor Chantal Chenu discusses the mechanisms of pain in Paget's Disease of Bone with Professor Rob Layfield.
Watch time: 8 min
Research uncovers surprising skin sensitivity
Research revealed that the skin covering Pagetic bone is far more sensitive than normal, offering new insight into the causes of pain in Paget’s disease.
Watch time: 4 min
A GP's perspective on Paget's disease
GP Dr Cat Nairn emphasised the importance of timely diagnosis and specialist referral
Watch time: 4 mins
A personal story plus questions and answers
(Watch time: 26 min) Having lived with Paget’s disease for some years and suffered complications, Keith explained the difficulties he encountered when he needed a hip replacement.
Allan's story
(Watch time: 7 min) Allan describes how Paget’s disease stopped him from dancing, but following successful treatment, he found himself able to return to the dance floor.
Anne - Paget’s in the family
Anne shares how participating in Paget’s research led to her diagnosis of Paget’s disease
Watch time: 5 mins
Awards for research students
(Watch time: 22 min) Alisha Sharma and Nicole Ball received Student Research Bursary Awards from the Paget's Association for their research into Paget's Disease of Bone.
Bones in a dish unlock new possibilities for treatment
(Watch time: 10 min) Dr Philippa Hulley (University of Oxford) discusses research funded by the Paget’s Association to develop a fully human 3D bone model of Paget’s disease.
Brazil - An interview with Dr Luiz Griz
(Watch time: 8 min) Paget's disease is discussed by Dr Luiz Griz and Dr Tori Herridge. In Brazil, most cases reported are from Recife.