Get Involved in Research
The Paget's Association encourages and assists research into many aspects of Paget's Disease. Research is important to improve our knowledge and make new advances translate into care, in the areas of prevention, screening and diagnosis, treatment and quality of life.
Our Chairman, Professor Stuart Ralston discusses new Paget's research in the video below. There are opportunities for patients from all over the UK to get involved. Scroll down for information about a pain study and useful links.
PAIN in PAGET'S
For an opportunity to take part, read about the Pain in Paget's study here. You can also watch the video below where Professor Ralston discusses pain and Kathryn Berg explains the study.
- if you are a patient interested in taking part in Paget's research
Other useful websites:
THE NHS NATIONAL INSTITUTE FOR HEALTH RESEARCH: Clinical Research Network. The Clinical Research Network: Metabolic and Endocrine theme supports the setup and delivery of clinical research within the NHS working alongside clinicians, commercial companies and patient organisations to provide an infrastructure to deliver research trials. If you would like more information on the work of the NIHR Clinical Research Network for Metabolic and Endocrine disorders, you can access their website here.
Search for clinical studies taking place in the UK via the UK Clinical Trial Gateway - click here for details.
Find a Clinical Research Study - search for studies recruiting patients in your local area - visit the website.
INVOLVE has a research jargon buster - follow this link.
People in Research is a resource where researchers can advertise opportunities to get involved in research - find details here.
NIHR Journals Library is an open-access library with the results of research - follow this link to their website.
INVOLVE is part of the National Institute for Health Research, to support active public involvement in NHS, public health and social care research. Follow this link for more information.
National Association for Patient Participation: follow this link for details.