Michael is glad he had the infusion 

Michael became a member of the Paget’s Association and wanted to share his experience of Paget’s disease. Michael works as a part-time security officer in London and is also studying full-time for a Health Sciences with Foundation Degree. His spare time is taken up with activities including exercising, walking, reading and computers. Here is Michael’s experience in his own words. 

I felt that it took a long time for me to be diagnosed with Paget’s disease. I am 65 now, and although it was diagnosed only recently, looking back I think I may have had it for a number of years. I experienced pain in several areas, and Paget’s disease was suspected last year when I had an abnormal blood test and was referred to a specialist. Scans and x-rays revealed that I have Paget’s in my pelvis, left shoulder, and right arm. 

I was prescribed an infusion of zoledronic acid, which I had in March. The after-effects were similar to having flu, such as shivering and shaking, however, I’m so glad that I had the infusion, as the pain has improved. Should I require further treatment, I won’t hesitate to agree to it.  

I have to say that there isn’t anything I have had to change or give up due to Paget’s disease, and to anyone who suspects they may have Paget’s, I would advise you to go to your GP and get it assessed straight away. 

Michael