Allan’s Journey

Allan, a valued longstanding member of the Paget's Association, has generously shared his personal story through a short video series. By opening up about his experiences, Allan hopes to support others facing similar challenges and highlight the vital role the Paget's Association has played in providing information, guidance, and encouragement throughout his journey.

Allan’s journey: discovering Paget’s Disease of Bone (part 1 of 3)

In the first of three short videos, Allan shares how he was diagnosed with Paget’s Disease of Bone. He talks about how the diagnosis was made and that he was referred to a rheumatologist for specialist care. It's a short personal insight into living with this bone condition. Watch the other videos in this series to hear about Allan’s treatment and how he found support through the Paget’s Association. 

Allan's journey: finding support for Paget’s Disease of Bone (part 2 of 3)

In the second video of this series, Allan shares how he became involved with the Paget’s Association. He explains the value of support and information in living well with Paget's Disease of Bone. Watch Allan's next video below for more information. 

Allan’s journey: discovering Paget’s Disease of Bone (part 3 of 3)

In the final video of the series, Allan talks about his symptoms and his treatment for Paget’s Disease of Bone. He explains how he found support at a Paget’s information event organised by the Paget’s Association.

Help us to continue supporting people

As the UK’s only charity dedicated to Paget’s disease, the Paget’s Association is committed to raising awareness and vital funds through the PagetAlert campaign, which aims to promote earlier diagnosis and reduce the pain and anxiety experienced by those living with the condition.

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Allan's interview with Prof Ralston - Paget's Awareness Day 2023

Allan describes how Paget’s disease stopped him from dancing, but following successful treatment, he found himself able to return to the dance floor.

Allan's Paget's News article

Allan was kind enough to share his story in an article which featured in in our Paget's News Magazine, click the link below to read the full story 

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