Paget's Awareness Day 2026

Pain in Paget's - not your ordinary pain!

The Paget’s Association is committed to promoting earlier diagnosis to help reduce the pain, anxiety, and distress associated with Paget’s disease. On International Paget’s Awareness Day 2026 (11 January), the spotlight is on one of the most significant aspects of the condition: pain. To mark the occasion, four new video interviews are being shared, each highlighting this important issue.

Video 1: Beyond ordinary pain: Anne’s experience of Paget’s Disease of Bone

Released for International Paget’s Awareness Day 2026, this video sheds light on the impact of Paget’s‑related pain. Anne Lambley first noticed a dull ache in her elbow in 2019, which was later diagnosed as Paget’s Disease of Bone. In 2024, while getting a tattoo near the affected area, she experienced extreme pain. Her story highlights findings from the Pain in Paget’s study, showing that people with Paget’s disease often have increased sensitivity to pain and vibration. Watch the video below.

Video 2: Pain in Paget’s disease research uncovers surprising skin sensitivity

Researchers Kathryn Berg and Dervil Dockrell sit down with Professor Stuart Ralston to discuss their work on the Pain in Paget’s Disease of Bone study. Their research revealed that the skin covering Pagetic bone is far more sensitive than normal, offering new insight into the causes of pain in Paget’s disease. Watch all the Paget's Awareness Day videos below.

Video 3: Pain mechanisms in Paget’s Disease of Bone

Researcher Professor Chantal Chenu discusses the mechanisms of pain in Paget's Disease of Bone with Professor Rob Layfield, Chair of the Research Subcommittee of the Paget's Association, a UK charity. Check out the video below.

Video 4: Why pain doesn’t always respond to treatment

Professor Ralston interviewed Professor Lesley Colvin, a co-author of the new SIGN (Scottish Intercollegiate Guidelines Network) guideline on the management of chronic pain (part 1). Professor Colvin explored pain mechanisms and possible reasons why pain in some people with Paget’s disease does not respond to bisphosphonate treatment. She also discussed medicinal cannabis and, in addition, noted that guidance on diet and exercise in relation to pain would be published in the forthcoming part 2 of the guideline.