Online Membership Pack
Thank you for signing up to become a member of the Paget's Association. Below, please find information on Paget's Disease of Bone, which we hope you will find helpful. If you have any specific questions or concerns you would like to discuss, please contact our Paget's Nurse Helpline here.
Paget's Disease - The Facts
Useful information regarding Paget's disease which may answer some of the questions you may have
PDF 1.7mb
Paget's Disease and Pain
Understand pain in relation to Paget’s disease and how it might be managed
PDF 621.2kb
Paget's Disease - Investigations Explained
Investigations that may be carried out in relation to Paget’s disease
PDF 330.7kb
Paget's Jargon Buster
Understand the language that might be used in relation to your care and treatment
PDF 745.8kb
Paget's News magazine: issue 203 - 2024
In this issue, we answer your questions, launch a new campaign and consider a link between Paget's disease and coal.
PDF 2.5mb
Paget's News Magazine - issue 204 - 2025
The survey results are in! We take a look at what you said about your experience with Paget's, diagnosis and pain. Also: study paves the way for ground-breaking research.
PDF 2.3mb
Clinical Guideline - Summary
A clinical Guideline, for the Diagnosis and Management of Paget’s Disease of Bone in Adults, which assists health professionals to consider the evidence and discuss options with t…
PDF 1.2mb
Paget’s disease and orthopaedic surgery
In certain instances, individuals affected by Paget’s disease may find it necessary to see an orthopaedic surgeon.
PDF 647.3kb
Paget's Passport
The Paget's Passport is a record of your health in relation to Paget's disease. This can be requested as a paper version (5" x 3.5" / 12.5cm x 8.75cm) by members of the Association.
PDF. 370.0kb
Bones and Paget's disease
An overview of the adult skeleton and how Paget’s disease affects the bone’s structure.
PDF. 290.1kb
Review of bisphosphonates for Paget's
Our Specialist Paget’s Nurse, Diana Wilkinson, summarises here a Cochrane Review for the use of Bisphosphonates as a treatment for Paget’s Disease of Bone.
PDF. 133.9kb
Support Network, Paget's Buddies and Virtual Support Groups
Would you like to talk to others who have similar concerns about Paget’s disease? Find out more about our members only network and more.
PDF. 185.9kb
Help us make a difference
Your donations help us to change the lives of those with Paget’s Disease and every donation, no matter how small, is appreciated.