Looking for Information on Paget's Disease of Bone?

A basic information sheet can be downloaded here: Paget's Essential Facts

Paget's Disease - The Facts

If you have been newly diagnosed with Paget’s Disease of Bone you will probably have many questions. This 'Facts' booklet has been produced by the Paget’s Association with the aim of providing evidence-based information on Paget’s disease. More detailed than the Simple Facts information sheet above, you will find in this booklet, information regarding various aspects of the condition. This includes how it affects bone, diagnosis, treatment, complications, surgery and conditions associated with Paget's disease, as well as details of other organisations which you may find useful. Download now from the Member's Area or contact us to request a hardcopy.

Paget's Disease & Pain: Booklet

The Paget’s Association has produced this booklet for anyone with Paget’s disease who has pain. It will help you understand your pain and how it might be dealt with. 

Download the pain booklet from the Member's Area. You will also find information regarding pain in Paget's by following this link. Contact our Helpline for support and information.

Investigations Explained: Booklet

The Paget’s Association has produced this booklet for anyone who may have Paget’s disease. It provides information regarding investigations which may be carried out.

You can download the investigations booklet from the Member's Area. Please contact our Helpline for support and information.

Leaflets for Clinics

If you are a HEALTH PROFESSIONAL and would like leaflets or booklets for your patients, please contact us and we will be happy to supply them free of charge. 

Paget’s Passport

Together with the team at the Southampton Paget’s Association’s Centre of Excellence, we produced a 20 page Paget’s Passport for patients. The Passport is your record of your health in relation to Paget’s disease. This one document provides useful information for you and for all those involved in your care. This includes a brief description of what Paget’s disease is, details of which bone/s are affected, the investigations which led to the diagnosis and details of any treatment given. There are also key dates which can assist your care team to locate the relevant details in your NHS file promptly. The Passport is useful for any appointments with health professionals, including dentists and pharmacists, and allied health care professionals such as audiologists, radiographers, occupational therapists, dietitians and physiotherapists. This will help raise awareness of Paget’s disease and aid communication across many departments and specialities. It is also a useful document to take on holiday with you. Whilst the Paget’s Passport does not replace your NHS records, if completed correctly, it provides a useful summary to compliment them and assist those involved in your care.

Paget's Magazine

Paget's News is a quarterly magazine sent to members of the Paget's Association. For a free sample, please contact us or download a sample here.

Current and previous issues can be viewed if you log in to the members' area of this website.

Paget's Membership: 

Become a Member of the Paget's Association to receive a detailed Paget’s Information Pack, Paget's Passport and our informative Magazines. Follow the link below for full details. Membership of the Paget's Association is important because when we have new information or research to share regarding treatment, prevention or any aspect of Paget's Disease of Bone, we know who to tell!. Members also benefit from free attendance at our Paget’s Information events. Membership is just £15 per year for those in the UK and £20 per year (overseas). Click on the link below the photos to discover more about membership.

View membership options for further information.

Register or log-in

Information Sheets

Information sheets about many aspects of Paget's disease are also available in our Member's Area.

Professional Funding Opportunities

Download our Research and Educational Funding leaflet here:

Donate

Donate £15 for a Paget's Support Bag - follow this link to find out more!  If you simply wish to donate to help us change the lives of those with Paget’s disease, please follow this link.