Welcome to our resources, where you can download our booklets, read a magazine or watch a video. If you require information in any other format, please get in touch.
Beyond ordinary pain
When getting a tattoo near the Pagetic bone, Anne experienced extreme pain. Her story highlights findings from the Pain in Paget’s study.
Watch time: 6 min
Geraldine’s struggle with Paget’s disease
Geraldine speaks openly about her challenging journey to diagnosis and treatment
Watch time: 7 mins
Paget's Disease - Investigations Explained
Investigations that may be carried out in relation to Paget’s disease
PDF 330.7kb
Paget's Disease - The Facts
Useful information regarding Paget's disease which may answer some of the questions you may have
PDF 1.7mb
Paget's Disease and Pain
Understand pain in relation to Paget’s disease and how it might be managed
PDF 621.2kb
Paget's News Magazine: issue 206 - 2025
We look at blood tests and tinnitus. We also invite you to ask Prof Ralston questions live online. Plus, a gift for your loved ones.
PDF 3.3mb
Paget's News Magazine: issue 207 - 2026
This edition - the pain of Paget's - it's no ordinary pain! Read Recardo's story and why not join us in Elstree or Newcastle?
PDF 6.0mb
Paget's information events
(Watch time: 3 min) This highlights how useful our information events are for those affected by Paget’s disease to be able to meet experts and ask questions.
Paget’s disease and orthopaedic surgery
In certain instances, individuals affected by Paget’s disease may find it necessary to see an orthopaedic surgeon.
PDF 647.3kb
Pain mechanisms in Paget’s
Researcher Professor Chantal Chenu discusses the mechanisms of pain in Paget's Disease of Bone with Professor Rob Layfield.
Watch time: 8 min
Research uncovers surprising skin sensitivity
Research revealed that the skin covering Pagetic bone is far more sensitive than normal, offering new insight into the causes of pain in Paget’s disease.
Watch time: 4 min
Why pain doesn’t always respond to treatment
Professor Colvin explored pain mechanisms and possible reasons why pain in some people with Paget’s disease does not respond to bisphosphonate treatment.