The Paget's Association is a national UK charity providing support for those with Paget's Disease of Bone. One of the ways we do this is to provide a Helpline for anyone affected by Paget's disease and their family.
You can contact the team here at the Pagets' Association for support, advice or simply a listening ear. We can also put you in touch with others who have similar concerns.
In addition, we have an experienced Registered Nurse, who is available during office hours, for support on all aspects of Paget’s disease.
Contact Form: follow this link to use the online form
Telephone: UK Telephone Helpline - 0161 799 4646 and ask for the Nurse.
Write to: Paget’s Helpline, The Paget’s Association, Suite 5, Moorfield House, Moorside Road, Swinton, Manchester, M27 0EW.
It is our aim to answer all contacts as soon as possible, within normal office hours. Whilst most are answered immediately, we do ask that you allow one working day for a reply. If you have an urgent problem, depending on the nature of the query, please contact your GP, hospital or pharmacist.
In addition to the Nurse Helpline, our Specialist Paget's Nurse also manages our other information and support services. Please browse this website for details of our Virtual Support Groups, Support Network, Local Support Groups and more.
In the video below, our nurse explains some of the resources available to patients from the Paget's Association. You may be interested in our Paget's Jargon Buster, which can be found by following this link.
Help us to help others! - donate £15 for a Paget's Support Bag - follow this link to find out more! If you simply wish to donate to help us change the lives of those with Paget’s disease, please follow this link.