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Paget's Helpline

The Paget's Association is a national UK charity providing support for those with Paget's Disease of Bone. One of the ways we do this is to provide a Helpline for anyone affected by Paget's disease and their family. Professionals can also contact us for information.

You can contact the team here at the Paget's Association for support, advice or simply a listening ear. We can also put you in touch with others who have similar concerns. In addition, we have an experienced Registered Nurse, who is available during office hours, for support on all aspects of Paget’s disease.

Contact the Helpline


Contact Form: follow this link to use the online form


Telephone:  UK Telephone Helpline - 0161 799 4646

It is our aim to answer all contacts as soon as possible, within normal office hours. Whilst most are answered immediately, we do ask that you allow one working day for a reply. If you have an urgent problem, depending on the nature of the query, please contact your GP, hospital or pharmacist.

Please browse this website for details of our Virtual Support Groups, Support Network, Local Support Groups and more. 

In the video below, our nurse explains some of the resources available to patients from the Paget's Association. You may be interested in our Paget's Jargon Buster, which can be found by following this link.

Help us to help others! - donate £15 for a Paget's Support Bag - follow this link to find out more!  If you simply wish to donate to help us change the lives of those with Paget’s disease, please follow this link.


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If you are not a member of the Association, but would like to stay up to date with our news and events via our mailing list, please sign up here to become a Friend of the Paget's Association. Please note, if you are a member, there's no need to sign up here as you already receive our updates and much more!

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