Virtual Paget’s Support Groups
So far, our Virtual Paget’s Support Groups have supported people in the UK, Australia, the USA and Canada. (For local groups, please scroll down).
If you would like to join one of our online meetings, please let us know which, out of the groups listed below, suits you best - you can contact us by using this link or email firstname.lastname@example.org
Those who indicate their desire to join are sent a link a few days before the meeting. If you have any questions, please do not hesitate to get in touch.
The group meetings are for anyone affected by Paget's disease, including partners and family. Group meetings are held online, using Zoom, for an hour, every two months. There is no obligation to join every meeting. Those attending have the opportunity to speak with others affected by Paget's Disease of Bone, receive information, watch videos regarding various aspects of Paget's, make new friends and gain support from each other, as well as from our Specialist Paget's Nurse, Diana, who facilitates the meetings.
Group 1: Monday 15:00 hrs (GMT)
Group 2: Tuesday 9:00 hrs (GMT)
Group 3: Wednesday 18:00 hrs (GMT)
See the dates and register here
Local Support Groups
Come along to our small, informal Paget's Support Group in Sheffield. This is for those affected by Paget's Disease of Bone, as well as their family and friends. Join us for refreshments, make friends and obtain information about Paget's. The group meets around three times a year and there is no charge to attend.
Venue: The Green Meeting Room, Church of the Christ, Station Rd, Darnall, Sheffield, S9 4JT, which has disabled access and parking.
Time: 13:30 hrs - 15:00 hrs.
For further information contact: Diana on 0161 799 4646 or get in touch here.
If you are interested in running a support group in your area please get in touch.
Facebook Support Group
The Paget's Association also has an online support group on Facebook. To find out more or to join the group, please click here.
Wherever you live in the world, all members of the Paget's Association can join our Paget’s Support Network. This is a free network to enable members to talk to others who either have Paget’s disease or who care for someone who has the condition. Communication can be by telephone, letter or email. It is a free, mutually supportive network and is open to any Paget’s Association member wherever you live in the UK or abroad.
Many who join our Support Network make new friends. You can choose who to contact and how to communicate. You must be a member of the Paget’s Association (for membership details follow this link).
To find out more about the Paget's Support Network follow this link.
Paget's Information Events
Meet others by coming to a Paget's Information Event or Member's Day - follow this link for details.
Help us to help others! - donate £15 for a Paget's Support Bag - follow this link to find out more! If you simply wish to donate to help us change the lives of those with Paget’s disease, please follow this link.