Expert Presentations on Paget's Disease
Watch Presentations from our York Information Event
The team at the Paget’s Association was pleased to welcome members to our Members’ Day, in York, on Friday 9th July, especially as it was the Association’s first face-to-face event for members since the start of the pandemic.
To enable the meeting to go ahead and to comply with COVID‑19 social distancing regulations at the time, we were required to change the venue from the National Railway Museum to the Riverside Suite of the Park Inn, York. Several measures were put in place to ensure that safety guidelines were met during the event. Those attending joined trustees and staff for lunch, followed by presentations from those with excellent knowledge of Paget’s disease.
The following talks were pre-recorded prior to the York event, in case any of the speakers were unable to attend on the day. We have now made them available to those unable to attend.
Watch the video below for an introduction from our Chairman, Professor Stuart Ralston.
Paget's and Bone
How does Paget’s disease affect bone?
Professor Ralston gave a presentation prepared by Dr Anna Daroszewska, a trustee from Liverpool, who had been unable to attend on the day.
Professor Ralston presented the latest information regarding the medical treatment of Paget’s disease, and reminded the audience that pain is the most common symptom of the condition.
As those who have Paget’s disease sometimes require orthopaedic surgery, Mr Navnit Makaram, from Edinburgh discussed procedures such as hip and knee joint replacement and how breaks in the bone (fractures) can be repaired.
Specialist Paget’s Nurse, Diana Wilkinson, highlighted three aspects of the Association’s work that are making a difference.
Trustee, Professor Rob Layfield, from Nottingham, explained the Paget’s Association’s research strategy and how applications for funds are assessed to ensure that the Association only funds research of excellent quality.
The final presentation of the day was by Honorary President of the Association, Professor Graham Russell, whose pioneering role in the discovery and study of bisphosphonates used to treat Paget’s disease and other conditions, has brought benefit to millions worldwide.
Unable to attend on the day, he had filmed his presentation so as not to disappoint those attending. He guided the audience through the fascinating story of how bisphosphonates were developed to treat Paget’s disease, describing how treatments are developed from the laboratory bench to clinical trials, before being approved as a treatment for those affected by Paget’s disease.
Members had their questions answered
The event was an excellent opportunity for those attending to have their questions answered. If you would like your questions answered, you may be interested in our other Information Events.
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