The event features expert-led sessions covering understanding Paget's disease, symptoms, diagnosis, treatment, and research, along with discussions on genetic testing and orthopaedic surgery. Speakers include prominent researchers and specialists such as Prof. Stuart Ralston, Dr Faiz Rahman and Prof. Robert Ashford. The day includes refreshments, lunch, and a Q&A session, offering valuable information and engagement opportunities for those attending.

Feedback from Paget's information events

We know from feedback that those who attend our Paget's information events feel better informed about Paget’s disease and better prepared to discuss the condition with their healthcare professionals.

We asked attendees what they found most beneficial about our Paget’s information events and here are some of the responses.

• There was enough time between the sessions to meet and talk with both those affected by Paget’s and specialists
• I now have a better understanding of the condition
• The genetic information
• Different aspects of Paget’s: causes, genetics, good effects of treatments used, diagnosis in good time
• The relaxed nature and humour in which the information was put across helped me to absorb the information better
• It has been a very interesting and informative day
• Excellent!
• It’s not often with an illness/condition you are able to understand the complexities presented by the experts
• Lots of new and interesting information
• Helpful information into the condition of Paget’s disease, complications, treatment and especially pain
• I feel more confident when returning to my Dr to discuss things
• Finding out more about the disease and the different tests and treatments available
• It reduced the shock of diagnosis through the good explanations of treatment options

Watch the video below to discover a Paget's information event