Support the Paget's Association

The Paget’s Association is the sole national UK charity dedicated to supporting everyone affected by Paget’s Disease of Bone, offering vital services such as a Specialist Nurse Helpline, informative events, and clear, accessible guidance for patients and healthcare professionals.

We also fund crucial research into the condition’s causes, genetics, and patient experience to improve diagnosis, treatment, and overall patient care. 

Right now, the charity is in a pivotal moment, relying entirely on donations, fundraising, and legacies to sustain its life-changing services. Your support, no matter how small, directly helps reduce painful delays in diagnosis, improves mental wellbeing, and ensures the Association can continue offering expert care and support for people affected by Paget’s disease.

Our campaign to drive early diagnosis

The Paget’s Association's campaign PagetAlert is set to drive our mission for earlier diagnosis and to reduce the pain and anxiety for those living with the condition. For those at risk of Paget’s disease or with a family history, early intervention can control symptoms and reduce progression. Unfortunately, even today, we know from our experience supported by a recent e-survey* that many are suffering unnecessarily from the impact of bone pain despite effective treatment being available.

PagetAlert has an ambitious target of £75,000 which will help us to address the delays in diagnosis of Paget’s disease that can lead to unnecessary complications, including pain, bone deformities and fractures.

All our funding comes from donations and legacies so please support us by contributing to:
• reduce diagnosis time
• ensure pain is properly managed

The Paget’s Association will also continue to:
• encourage new research to evaluate potential genetic testing to identify those at most risk
• provide accurate and up-to-date clinical guidelines, resources and quality support
• still be here for you, your families, and future generations in years to come