Our charity and purpose 

In April 2023, we held an Extraordinary General Meeting (EGM), where our members voted in favour of beginning the process to convert our charity into a Charitable Incorporated Organisation (CIO). Since then, we’ve been working carefully to ensure that this transition is as smooth as possible. This change marks an important step in strengthening our structure and securing a resilient future.

A Charitable Incorporated Organisation (CIO) is a legal structure designed specifically for charities that wish to operate as a corporate body. A CIO offers company-like benefits with simpler regulation. We are registered with the Charity Commission rather than Companies House and we can enter into contracts and hold property in our own name. Our Trustees have limited liability.

Our address

In 2023, the charity moved from Swinton, Salford, to its registered office in Ancoats. Our address is The Paget's Association, Jactin House, 24 Hood St, Ancoats, Manchester, M4 6WX. Please note that this is a postal address only - we are unable to receive visitors in person. You can telephone us on 0161 7994646.

Two charities

If you visit the Charity Commission’s website, you may notice that two charities are currently listed:

• The National Association for the Relief of Paget’s Disease (AKA The Paget's Association)

Founded by Ann Stansfield in 1973, she laid the foundation for our enduring mission to support those affected by Paget’s Disease. Officially registered as The National Association for the Relief of Paget’s Disease, we operate day to day as The Paget’s Association (registered charity no. 266071). We’ve been providing information and support, funding and encouraging research, and raising awareness ever since.

• The Paget’s Disease of Bone Association

This is our newly registered CIO, has an improved name for clarity, as several other conditions also bear the Paget name. We officially registered The Paget’s Disease of Bone Association on 9 June 2025 (registered charity no. 1213575).

As we move forward with the transition from the original charity to the CIO, we want to reassure you that we’re handling it with continuity in mind. For a period of time, both our old and new charities will operate side by side. This overlap allows us to complete the legal and administrative steps smoothly.

Here’s what you can expect

• Operational continuity: our services, Paget’s Helpline and research commitments continue as normal.
• Contact details: our registered office and contact details remain unchanged.
• The same Trustees and staff: the people you know and trust will continue their work.
• Transfer of assets: all funds, assets and resources will transfer to the new CIO, ensuring our work on behalf of those affected by Paget’s disease continues seamlessly.
• Automatic membership transfer: if you're currently a member of The Paget’s Association, your membership will automatically transfer to The Paget’s Disease of Bone Association.

Board of Trustees

The charity is overseen by the Board of Trustees which sets strategies and policies. The main Board has three sub-committees: the Finance sub-committee, the Digital Marketing and Communications sub-committee, and the Research sub-committee. The sub-committees enable the effective delivery of organisational objectives and give strategic advice to the Board. 

The employees of the charity deliver the Association's objectives under the guidance of the Association's Chair, Professor Stuart Ralston.

You will find details about the team here.