Together with the team at the Southampton Paget’s Association’s Centre of Excellence, we produced a 20 page Paget’s Passport for patients. The Passport is your record of your health in relation to Paget’s disease.
This one document provides useful information for you and for all those involved in your care. This includes a brief description of what Paget’s disease is, details of which bone/s are affected, the investigations which led to the diagnosis and details of any treatment given. There are also key dates which can assist your care team to locate the relevant details in your NHS file promptly.
The Passport is useful for any appointments with health professionals, including dentists and pharmacists, and allied health care professionals such as audiologists, radiographers, occupational therapists, dietitians and physiotherapists. This will help raise awareness of Paget’s disease and aid communication across many departments and specialities.
It is also a useful document to take on holiday with you. Whilst the Paget’s Passport does not replace your NHS records, if completed correctly, it provides a useful summary to compliment them and assist those involved in your care.
The Paget's Passport is available to all members of the Association and comes as part of a membership pack.
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