Support During the COVID-19 Pandemic
We understand that many of you will be anxious about COVID-19. We would like to reassure you that the Paget’s Association continues to offer support to anyone affected by Paget's Disease of Bone.
Remote Consultations and Help Online
Our Specialist Paget’s Nurse, Diana Wilkinson, has been looking at the NHS services that are available online, how patients are increasingly interacting remotely, and she provides guidance on remote consultations. Please click here to view the article (pdf).
Paget’s Nurse Helpline
We Want Your View
It is important to us to consider the views of all those whom we support as we continue to look at new ways to assist and support you. We would like to know how many people would be interested in joining us online using technology, such as Zoom. Perhaps you have used this with your family and friends during the lockdown? For example, you may be interested in a short Paget's Information Meeting, a virtual Support Group or an online Paget's Question and Answer session with an expert. If you would be interested in any of the above, please contact us.
Our Paget’s Patient Information Events
We have taken the decision to postpone our Paget's Association Members’ Day in York until June/July 2021. Our October Paget's Information Day in Southampton has been postponed until next autumn. Click here for details.
Supplying a Face-Covering to All Members
We sent a face covering to all our members for their personal use. They are classed as a 'face-covering' and have an optional filter, which can be placed in the pocket between the two layers of fabric. Whilst we are not able to supply replacement filters, the fabric face covering can be washed and reused. The UK Government’s advice is clear that face coverings and masks are not a substitute for social distancing. They advise, however, that face coverings are worn in enclosed places where social distancing may be more difficult to achieve when you are likely to come into contact with people you do not normally meet. This is most relevant for short periods indoors and in more crowded areas, such as on public transport or in some shops. There is evidence that face coverings can protect others from getting infected if you have coronavirus but have not developed symptoms. Emerging evidence suggests that they may also afford some personal protection. It is important to remember that face coverings are not a substitute for social distancing and handwashing, which are the most effective ways of avoiding coronavirus. They do not offer the same level of protection as surgical masks or respirators used by doctors, nurses and other healthcare workers as part of personal protective equipment.
Remember, if you have symptoms of coronavirus, for example, a cough and/or high temperature, or loss of taste or smell, you and your household should isolate at home. Wearing a face covering does not change this advice.
Non-members can purchase masks from our shop whilst stocks last.
How to Use a Face Covering
It is crucial to take care to use and remove face coverings properly, otherwise, you could increase your risk of infection by touching your face more or contaminating the face covering. Here are some tips:
Always wash your hands before putting on a mask or face covering.
It should cover your mouth and nose and fit as snugly as possible without gaps.
The fit should be comfortable, but secure when in use. This is important so you do not need to adjust it during use.
If you wear glasses, you may have issues with them steaming up, try to adjust the fit so it is tighter across your nose. If you raise the height of the face-covering, the weight of your glasses may help to hold it flush to your face.
During use, avoid touching or adjusting the mask. Do not pull it down and back up while wearing it as this can transfer virus particles from the outside to your mouth and nose.
Remove the face-covering from behind. Do not touch the front or your face.
If using a disposable filter, you should remove this and place it in the bin before washing the face covering.
Drop the fabric face-covering directly into a soap solution after use and wash it thoroughly. If you are unable to wash it straight away, store it in a sealed plastic bag until you have the opportunity to wash it.
Wash your hands afterwards.
Answering Your Questions
We have provided some questions and answers regarding COVID-19 and those who have Paget’s disease. You can view the information by following this link.
Become a Member
To receive a detailed Paget’s Information Pack and our magazines, why not join the Paget’s Association?
Membership is just £15 per year for those in the UK and £20 per year for those overseas. Click here to discover more about membership.