What we are Doing to Provide Support at this Time

We understand that many of you will be anxious about COVID-19. We would like to reassure you that the Paget’s Association continues to offer support to anyone affected by Paget's Disease of Bone.

Supplying a Face-Covering to All Members

Within the coming weeks, we are posting a face covering to all our members for their personal use.

It has an optional filter, which can be placed in the pocket between the two layers of fabric. Whilst we are not able to supply replacement filters, the fabric face covering can be washed and reused.

The UK Government’s advice is clear that face coverings and masks are not a substitute for social distancing. They advise, however, that face coverings are worn in enclosed places, where social distancing may not be possible and where you are likely to come into contact with people you do not normally meet. This is most relevant for short periods indoors, in crowded areas, for example on public transport or in some shops.

The evidence suggests that face coverings do not protect you, but may protect others if you have coronavirus, but have not developed symptoms. A face covering is not the same as the surgical masks or respirators used as part of personal protective equipment by healthcare and other workers.

Remember, if you have symptoms of coronavirus, for example, a cough and/or high temperature, you and your household should isolate at home. Wearing a face covering does not change this.

How to Use a Face Covering

It is crucial to take care to use and remove face coverings properly, otherwise, you could increase your risk of infection by touching your face more or contaminating the face covering. Here are some tips:

  • Always wash your hands before putting on a mask or face covering.

  • It should cover your mouth and nose and fit as snugly as possible without gaps.

  • The fit should be comfortable, but secure when in use. This is important so you do not need to adjust it during use.

  • If you wear glasses, you may have issues with them steaming up,  try to adjust the fit so it is tighter across your nose. If you raise the height of the face-covering, the weight of your glasses may help to hold it flush to your face.

  • During use, avoid touching or adjusting the mask. Do not pull it down and back up while wearing it as this can transfer virus particles from the outside to your mouth and nose.

  • Remove the face-covering from behind. Do not touch the front or your face.

  • If using a disposable filter, you should remove this and place it in the bin before washing the face covering.

  • Drop the fabric face-covering directly into a soap solution after use and wash it thoroughly. If you are unable to wash it straight away, store it in a sealed plastic bag until you have the opportunity to wash it.

  • Wash your hands afterwards.


Answering Your Questions

We have provided some questions and answers regarding COVID-19 and those who have Paget’s disease. In addition, Sir Michael Rawlins interviewed our Chairman and Chair of the Commission on Human Medicines, Professor Stuart Ralston, about potential treatment options for the COVID-19 virus. You can view the information by following this link.

Paget’s Nurse Helpline

Our Nurse Helpline and office phone lines are still available as normal. Follow this link to details of our Helpline or click here to contact us via this website.

Our Paget’s Patient Information Events

We have taken the decision to postpone our Members’ Day in York until June/July 2021. Our October Information Day in Southampton remains on our calendar and we hope to see as many of you there as possible. Click here for details.

Become a Member

To receive a detailed Paget’s Information Pack and our magazines, why not join the Paget’s Association?

Membership is just £15 per year for those in the UK and £20 per year for those overseas. Click here to discover more about membership.