COVID-19 and The Paget's Association
Updated June 2021
We would like to reassure you that the Paget’s Association continues to offer support to anyone affected by Paget's Disease of Bone. Our Nurse Helpline and office phone lines are available as normal, should you need to contact us.
Prof Stuart Ralston Answered Questions on COVID-19 Vaccinations
We invited members of the Paget's Association and of the Facebook Support Group to put their COVID-19 vaccination questions to Professor Stuart Ralston, live online, using Zoom, on 15th March 2021. You can watch the recording on YouTube. To take part in future Q and A sessions on Paget's disease and more, send an email to email@example.com or follow this link to contact us.
Your Vaccination Questions Answered
In the last year, we have all had to navigate our way through some incredibly unusual and difficult times. Our Chairman, Prof Stuart Ralston (pictured below), who after 8 years retired, in February 2021, from his position as Chair of the Commission on Human Medicines, has had both doses of the vaccine and said, “Like many healthcare workers in Scotland, I was fortunate to be offered the vaccine soon after it became available and I am happy to say that I have had no side effects whatsoever”. Read on for our answers to frequently asked questions.
Q. Why is vaccination important?
A. Vaccination is the most important thing we can do to protect ourselves and prevent unnecessary deaths from COVID-19.
Vaccines are an effective way of protecting people against a range of infectious diseases and since they were introduced, they have saved millions of lives each year across the world by preventing diseases like diphtheria, tetanus, whooping cough, influenza, and measles. Vaccines work by priming your immune system to recognise the bacteria and viruses that cause infections. This allows your immune system to recognise and rapidly kill the bacteria and viruses that cause infections before they have had a chance to make you ill. When we are vaccinated, we are not just protecting ourselves, but also those around us. When a person gets vaccinated against a disease or when they contract the disease themselves, their risk of further infection is much reduced. It is because of this that they are less likely to transmit the disease to others. This is known as “herd immunity”. It has been estimated that between 60-80% of the population may need to be vaccinated before herd immunity is achieved against COVID-19 so it is important that as many people as possible in the community get vaccinated.
Q. Does having Paget’s Disease of Bone prevent me from being vaccinated?
A. No. Having Paget’s disease is not thought to influence your response to the vaccine. Since Paget’s disease mainly affects people above the age of 50, who are more likely to become ill with Covid19, you should definitely consider being vaccinated.
Q. Are the COVID-19 vaccines safe and effective?
A. Yes. Three vaccines have been approved for use in the UK, manufactured by Pfizer/BioNtech, AstraZeneca and Moderna. All of these have been shown to be safe and effective and have undergone extensive safety checks by the MHRA. At the moment vaccinations are mainly being performed with Pfizer/BioNtech and AstraZeneca, but it is likely that the Moderna vaccine will be available in the spring. A limitation with the Pfizer/BioNTech vaccine is that it needs to be stored at very low temperatures, which makes transportation and storage of the vaccine difficult. The Astra-Zeneca vaccine, however, can be stored in an ordinary fridge, which means that it is much easier to deliver on a large-scale basis. All are being rolled out by the NHS.
Q. Are there any side effects?
A. Both vaccines can cause flu-like symptoms and mild pain and swelling at the injection site, but these are transient and usually subside after a few days. Serious side effects are very rare. Like all vaccines, there is a possibility of an allergic reaction occurring following immunisation. If this happens, the staff giving the vaccine are trained to deal with such reactions and treat them immediately.
Q. I think I may have had COVID-19. Can I still have the vaccine?
A. Yes, it is possible for you to have the vaccine even if you think you might have had Covid-19. Some people who took part in the vaccine trials already had antibodies against Covid-19, suggesting they might have previously been infected. Reassuringly these individuals did not experience any more side effects than those who did not have Covid-19 previously.
Q. Can I have the vaccine if I am unwell?
A. You can be vaccinated if you have a minor illness, such as a cold, and are not feeling unwell with it. If you are unwell, vaccination should be postponed until you are feeling better. If you think you have symptoms that could be due to coronavirus, you should get a COVID-19 test and self-isolate. Once your period of self-isolation has ended, you can go ahead and get the vaccine
Q. Once I have had the first dose of the vaccine, do I need to continue to take precautions against catching Covid-19?
A. Yes, it is very important that you maintain social distancing after having the first dose of the vaccine, for as long as the government advises, because it does not protect you against catching Covid-19 immediately. Depending on the type of vaccine you receive it can take between 2-3 weeks for it to start working. It is therefore important to continue to follow social distancing guidance and other restrictions to keep each other safe, for as long as the government advises.
Q. How important is it to have a second dose of the vaccine?
A The second dose is important to maximise your immunity against Covid-19 so it is important to have both doses. Since you will have some protection within 2-3 weeks following the first dose, the NHS has decided to aim to deliver the second dose of the vaccines that are currently available at around 12 weeks after the first. This is so that as many people as possible can get their first dose and start to gain protection against Covid-19.
Q. How long will the vaccine protect me against coronavirus?
A. This is not known yet, but it will become clearer as time moves on. The volunteers, who have had taken part in the vaccine trials, are being monitored to determine how long they are protected against Covid-19.
Play Your Part
By being vaccinated you are playing your part, in helping us all to get back to normal, and becoming free from the restrictions of the pandemic.
Why Wouldn’t You?
In December 2020, our Specialist Paget’s Nurse, Diana, asked some of our members if they were going to have the vaccine. Here are some of the responses -
“Mandy and I are both having it. Our shared view is: Why wouldn’t you? If we are to exit the pandemic then achieving & maintaining ‘herd immunity’ in the population through a mass vaccination programme is a key aspect of any viable and sustainable plan. Mass vaccination has been with us for decades in the fight against TB, Polio, Measles & Mumps etc, and vaccination for COVID-19 is just another logical progression in maintaining public health. We have no concerns over the need for, or the safety of, the vaccine.” Mandy and Simon, Dorset
“We are both intending to have the COVID-19 vaccine at the earliest opportunity, which hopefully will allow us to get back to some sort of normality at some point during 2021. These are really strange times and although we are coping well with the restrictions, what we are missing most is being with our family. Some winter sunshine abroad would also be nice, maybe in 2021 we will be able to?” Janet and Graham, Lincolnshire
“I will definitely be having the vaccine when I am invited to do so. My husband is in the vulnerable category and so we expect him to be offered it first. I am classed as being medium risk and being 72 will wait my turn for that group. It will be so good to get back to normal again after all the shielding. The vaccine is our first step to freedom!” Mary, Greater Manchester
“I will be having a COVID-19 vaccination if it is offered to me. I also want to say, ‘Thank you’. I am so grateful for all the information and support the Association gives me.” Brenda, Sussex
“We will both have the vaccine, to protect us, our family, friends, and to save lives worldwide. Covid-19 is like a huge storm bringing sadness and distress to so many people in different ways. It is with hope, that these new vaccines will bring help and stability to all nations.” Marjorie and Keith, Essex
Wait to be contacted - The NHS will let you know when it is your turn to have the vaccine. It is important not to contact the NHS for a vaccination before then.
General Questions about Coronavirus (COVID-19)
We understand that many of you will be anxious about COVID-19. Here are the answers to some of the questions that we have been asked, which are relevant to those with Paget's Disease of Bone:
Q. Am I at increased risk of COVID-19 because I have Paget’s Disease of Bone?
A. No, having Paget’s does not put you at increased risk of catching COVID-19. Neither does it increase your risk of having serious complications should you have the virus.
Q. I am due to have an infusion of zoledronic acid. Should I still have it and what if my appointment is postponed?
A. If you have an appointment to have an infusion you should attend as normal, unless instructed not to do so by the hospital. When attending, you should follow any instructions given with regard to COVID-19.
If your infusion treatment has been cancelled or postponed, and you have bone pain associated with Paget’s disease, it is possible to have bisphosphonate treatment in tablet form (Risedronate). Please check with your doctor if this would be suitable for you.
Q. If I get a fever after an infusion of zoledronate, does that mean it is COVID-19?
A. It is known that a potential side-effect of zoledronate is a high temperature, however, it is usually mild and short-lived. If you do get a temperature after receiving zoledronic acid and it persists for more than 2-3 days you should self-isolate according to the current advice from Public Health England.
Q. What about other procedures or investigations?
A. If you have any procedures or investigations planned, which are related to Paget’s disease, such as an x-ray or scan, postponed, this should not have any long-term detrimental effects. The NHS will still have availability for any very urgent procedures and investigations, such as if there is concern that a fracture may have occurred. The NHS will balance the benefits of going ahead with investigations and procedures with the risks of patients getting coronavirus or bringing coronavirus into the hospital. There should be a contact email you can use if you have more questions for your hospital team.
In 2020, the Paget's Association suppled a mask/face-covering to all members for their personal use. Non-members can purchase masks from our shop whilst stocks last. Remember, if you have symptoms of coronavirus, for example, a cough and/or high temperature, or loss of taste or smell, you should isolate at home. Wearing a face covering does not change this advice.
We're Here for You
We hope that you are all safe and well, please do not hesitate to contact us if you have any questions about Paget’s disease or our events.
PAGET'S EVENTS - LASTEST INFORMATION
YORK - Now taking place on 9th July 2021. Follow this link for details.
SOUTHAMPTON - Now taking place on Friday 8th October 2021. Click here for details.
SUPPORT GROUP MEETINGS (Manchester and Sheffield) - All Support Group Meetings have been suspended. Support remains available via our Paget's Nurse Helpline
You can find up-to-date information regarding COVID-19 by following this external link