News from Paget's Day!

Thank you to everyone who got involved in International Paget's Awareness Day on the 11th January 2021.

The Treatment Story.

Specially produced for the event our new videos explore treatment for Paget's Disease of Bone. You can watch them all by following this link.

The Paget's Association's Educational Award 

The Paget's Association strives to educate patients, health professionals, and the public about Paget's Disease of Bone.

Applications are now invited for the Paget's Association's Educational Award, aimed at enhancing the education of health care professionals, patients, carers and the public about Paget’s Disease of Bone. Applications are welcome from UK-based individuals, at all levels.

Paget's on Channel 4

Paget's Research, Orthopaedic Surgery and More

Paget's News is a quarterly magazine sent to members of the Paget's Association.  In the August 2020 issue we celebrated the success of the clinical Guideline for Paget's disease, Professor Wilkinson looked at orthopaedic surgery for those with Paget's and we looked at a new genetic research study and how those with Paget's disease can take part.

Keith's Story 
My Experience of Paget’s Disease

"For me, Paget’s came on the scene after going to the doctors with a painful leg and knees.

My golf days had become difficult and in the nineteenth (golf club bar) my friends would advise that a knee clean out was the solution. They spoke from personal experience, and after lots of nagging, I finally visited the doctors which was a rare occasion (perhaps it’s a man’s thing).

Support Online for Paget's Disease

Would an Online Event or Support Meeting Help You?

Would you join us online for any of the following?

• Paget’s Information Meeting

• Questions and Answers with a Paget’s Expert

• Support Group

Support During the COVID-19 Pandemic

We understand that many of you will be anxious about COVID-19. We would like to reassure you that the Paget’s Association continues to offer support to anyone affected by Paget's Disease of Bone.

Paget's Guideline Success!

The Paget's Association is pleased to announce that the Guideline for the Diagnosis and Management of Paget’s Disease of Bone in Adults, was in the top 10% of downloaded papers published in the Journal of Bone and Mineral Research 2018 - 2019.

COVID-19 and The Paget's Association

Updated 2nd Feb 2021 - We would like to reassure all our members that the Paget’s Association continues to offer support to anyone affected by Paget's Disease of Bone. Although our working arrangements are a little different at the moment, our Nurse Helpline and office phone lines are still available as normal, should you need to contact us.

Paget's Support Groups

Do you find that many people have never heard of Paget's disease or may not understand it? We have Support Group meetings in Sheffield and Manchester, where there will be the opportunity to meet others with Paget's disease, make friends and obtain information from a Specialist Nurse in an informal setting, over a cup of tea. The support groups are open to anyone who would like to attend, and friends and family are more than welcome. This meetings are free and refreshments are provided.