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Paget's in My Pelvis, Back and Neck

'I have Paget’s in my pelvis, lower back and neck. In 2001, I wrote an article, “Terry’s Tale”,  in the Paget’s magazine. In the following years, I looked after my wife, often pushing her in a wheelchair. She passed away in 2013, by which time I was suffering a lot of pain with tingling, numbness and weakness in my legs. My specialist suspected pressure on nerves and therefore, prescribed Gabapentin. I also had an infusion of Zoledronate, which lowered my alkaline phosphatase from 375 to 68. I now “manage” my condition with regular back/leg massage and don’t allow myself to get too tired.'


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