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Help Others by Sharing Your Experience

We know that those with Paget’s disease appreciate hearing the experiences of others with the condition. Follow this link to complete the 'Share Your Story' form. Alternatively, just get in touch to discuss sharing your story, for the benefit of others, on our website and/or in our magazine. Contact us by following this link.

Read about the experiences of others by following this link. There are also more detailed individual experiences in the Member's Area.

In the Member's Area:

Simon needed surgery to straighten his leg.

Irene's experience of diagnosis and treatment.

Doreen explains how it took 10 years to get a diagnosis.

Jean discusses Paget's disease and how she obtained treatment in South Africa.

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If you are not a member of the Association, but would like to stay up to date with our news and events via our mailing list, please sign up here to become a Friend of the Association. Please note, if you are a member, there's no need to sign up here as you already receive our updates and much more!

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