Help Others by Sharing Your Experience

We know that those with Paget’s disease appreciate hearing the experiences of others with the condition. Do get in touch with us if you are willing to share your story, for the benefit of others, on our website and/or in our magazine. Contact us by following this link.

Read about the experiences of others by following this link. There are also more detailed individual experiences in the Member's Area.

In the Member's Area:

Simon needed surgery to straighten his leg.

Irene's experience of diagnosis and treatment.

Doreen explains how it took 10 years to get a diagnosis.

Jean discusses Paget's disease and how she obtained treatment in South Africa.

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