Karen’s Diagnosis was a Complete Surprise
Karen lives in Queensland, Australia. She enjoys swimming, reading and photography. Before retiring, she worked in administration. Karen shares her experience below.
Lynda lives in Rhode Island, United States and was diagnosed with Paget’s disease when she was fifty-five. Here she explains how Paget’s disease has affected her.
Maureen is a retired lab technician who enjoys cross country running and swimming.
'I have Paget’s disease in my right shin (tibia). I am careful how much stress I put on it, so I tend to do my training on soft ground. I had an infusion in 2012. Since then, I have had no pain'.
“My mother had Paget’s disease. It took the hospital a long time to diagnose me but I know much more about it now that I have joined the Paget’s Association.”
Mike
Discover detailed individual experiences and more by in the Members' Area.
“I have Paget’s disease in my pelvis and some in my spine. I attended one of the Paget’s Information days. I found it very useful and enjoyable”. I have joined the Paget’s Support Network and will do my best to contact other sufferers”.
I was diagnosed with Paget’s Disease of the right tibia in 2014, at the age of 55. I have had 3 intravenous bisphosphonate infusions at the RNOH, with a good result but I was left with the classic sabre-shaped bowing of the tibia, both forward and outwards. This was gradually damaging my knee and ankle joints, walking was painful and I needed to use a stick.
"I have Paget's Disease in my pelvis and have known about it since 1991. The Consultant thought I’d had it since about 1974 and as far as I'm aware I have no family history of it. I was given a bisphosphonate infusion, which helped my pain. I didn't have any side-effects and I have not needed treatment for the last 10 yrs.
