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CALL FOR RESEARCH GRANTS

The Paget's Association's research grant round for 2010 is now closed. Information about grants awarded will be announced on this website as soon as the information is available. The grant round for 2011 will open in October 2010 please come back to this website then for further information.

GRANT PROPOSALS

As a new development in it’s grant round programme The Association would like to encourage applicants to register interest and provide brief details of their proposed application (limited to 1 side A4 sheet) at any time during the year. 

In response to this, the Trustees would provide rapid feedback which might facilitate a full application in time for the deadline for the grant round which will open in October 2010 and close in April 2011.  All full applications would be judged together at that time following peer review and comments from outside assessors.

Full application forms will be available on this website from 1st October 2010.

Grant proposals should be sent to Marilyn McCallum  director@paget.org.uk

RESEARCH STRATEGY

The Paget’s Association formerly known as The National Association for the Relief of Paget’s Disease (NARPD) is a charity which was founded in 1973 with the following aims:

  • Offer information and support to those suffering from Paget’s disease,
  • Encourage and assist research into the causes and treatments of the disease
  • To raise awareness of the disease among the medical profession and public at large

In order to further these aims the Trustees of the NARPD will fund research projects that:

  • Will, in the opinion of the Trustees, provide understanding of the causes, diagnosis, treatment or consequences of Paget’s disease.
  • Will, in the opinion of the Trustees, provide understanding of other areas of biology or disease which may provide insights into the better understanding of Paget’s disease and it’s consequences.

Such research proposals will usually be submitted by prospective researchers in response to advertisements placed in the scientific press by the Association or on the Association’s website www.paget.org.uk

The Trustees do, however, reserve the right to commission specific research projects in the areas defined above which they believe to be of particular benefit to sufferers of Paget’s disease.  Any projects commissioned on this basis will be subject to the same scientific scrutiny as proposals submitted in response to advertisement.

In considering any applications for research support the Trustees will take the advice of the Science & Research Committee as to the scientific quality and feasibility of the proposed research. In providing such advice the Science & Research Committee will, in most cases, seek the comments of appropriate external advisers.  Where possible applicants will receive feedback from external assessors.

As a condition of being awarded a grant researchers will need to provided regular reports on the progress of the research and also at the end of the grant produce two pieces for the newsletter and website (one written in lay-man’s terms) describing the research process and summarising the outcomes of the project.

Following the award of a grant most will be paid in quarterly instalments on receipt of an invoice from the relevant finance department.

GRANT AWARDS

APPLICANTS

TITLE OF PROJECT

AWARD AND DURATION

Dr J Crockett
Dr Miep Helfrich
Dr Lynne Hocking
Aberdeen

Mechanism of osteoblast activation by RANK mutations in early onset Paget’s disease

£46,148
Over 12 months

Dr Robert Layfield
Nottingham

Autophagy and Paget’s disease of bone

£8,000
Over 1 year

Dr Albagha
Prof Stuart Ralston

Etal
Edinburgh

Genetic determinants of disease susceptibility, disease severity and quality of life in Paget’s disease


£49,456
Over 2 years

Dr A Langston
Prof S Ralston

Etal
Edinburgh

Extended randomised trial of symptomatic treatment versus intensive bisphosphonate therapy on quality of life and clinical outcome in Paget’s disease: the PRISM-EZ study

£45,000
Over 2 years