Please support our new campaign
Did you know that 20% of people with bone pain report waiting more than 5 years for a diagnosis? During this time, the pain and other symptoms can have a huge effect on mental health and wellbeing.
Our PagetAlert campaign has an ambitious target of £75,000 which will help us to address delays in diagnosis which can cause pain and anxiety for those living with Paget's disease and potentially lead to unnecessary complications, including pain, bone deformities and fractures. Read more...
11 January 2025 was Paget's Awareness Day
Driving earlier diagnosis and appropriate treatment
For Paget’s Awareness Day, 11 January 2025, the Paget’s Association produced a series of impactful interviews with individuals living with Paget’s disease, a rheumatologist and a GP.
Professor Stuart Ralston emphasises the importance of early diagnosis. He highlights the challenges of delayed referrals and missed opportunities, and stresses the need for greater awareness of Paget’s disease within general practice.
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Come to a Paget's information event
Bring your questions about Paget's disease to a free Paget’s Information Event. In different areas each year, for 2025 we are in the Midlands and Bath.
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Virtual Paget's Support Groups
Join one of our Virtual Paget's Support Groups to connect with others who have Paget's disease from wherever you are in the world.
Continue readingThe treatment gave me a better quality of life. I am planning on walking the Camino de Santiago de Compostela in Spain -100 km on foot!
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Find out more about Paget’s
The Paget's Association is a national UK charity providing information and support to all those affected by Paget’s Disease of Bone. The Association funds quality research, raises awareness and supports professionals to achieve excellence in care and research.